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	<title>Comments on: Fast-Track Research on Conquering Chronic Fatigue</title>
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		<title>By: Michel Lee</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-214586</link>
		<dc:creator>Michel Lee</dc:creator>
		<pubDate>Thu, 02 Feb 2012 00:05:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-214586</guid>
		<description><![CDATA[I come to ME/CFS research after a decade of investigation into low level radiation syndrome and Gulf War Syndrome and am absolutely convinced there is a significant overlap with ME/CFS.  All of these conditions involve  neuroimmune dysregulation triggered by an assault upon the immune system.  All may be seen as a maladaptive reaction in which errant cytokine networks set off cycles in which the human machine, in effect, goes haywire.  

The strong weight of evidence indicates that ME/CFS constitutes a spectrum which differs in severity and clinical course.  Where a patient falls on the spectrum does not necessarily correlate with illness severity, but to the constellation of symptoms and the triggering event.  (ME can be viewed as being on the more neurologically affected end.) Thus Gulf War Syndrome, which was found to be triggered by the chemical agent pyridostigmine bromide (contained in protection pills given to U.S. and British troops to counter Soman nerve gas) resulted in a thousands of service personnel developing illness symptoms, and a certain percentage of those developing ME/CFS.  Likewise, the most detailed review of studies of the health effects of the Chernobyl nuclear power accident found a percentage of those victims developed CFS. [Yablokov AV, Nesterenko VB, Nesternenko AV, Chernobyl Consequences of the Catastrophe for People and the Environment, New York Academy of Sciences (2009) at 107-111.]   I would postulate that the Fukushima nuclear disaster will lead to an increase in ME/CFS in Japan.]]></description>
		<content:encoded><![CDATA[<p>I come to ME/CFS research after a decade of investigation into low level radiation syndrome and Gulf War Syndrome and am absolutely convinced there is a significant overlap with ME/CFS.  All of these conditions involve  neuroimmune dysregulation triggered by an assault upon the immune system.  All may be seen as a maladaptive reaction in which errant cytokine networks set off cycles in which the human machine, in effect, goes haywire.  </p>
<p>The strong weight of evidence indicates that ME/CFS constitutes a spectrum which differs in severity and clinical course.  Where a patient falls on the spectrum does not necessarily correlate with illness severity, but to the constellation of symptoms and the triggering event.  (ME can be viewed as being on the more neurologically affected end.) Thus Gulf War Syndrome, which was found to be triggered by the chemical agent pyridostigmine bromide (contained in protection pills given to U.S. and British troops to counter Soman nerve gas) resulted in a thousands of service personnel developing illness symptoms, and a certain percentage of those developing ME/CFS.  Likewise, the most detailed review of studies of the health effects of the Chernobyl nuclear power accident found a percentage of those victims developed CFS. [Yablokov AV, Nesterenko VB, Nesternenko AV, Chernobyl Consequences of the Catastrophe for People and the Environment, New York Academy of Sciences (2009) at 107-111.]   I would postulate that the Fukushima nuclear disaster will lead to an increase in ME/CFS in Japan.</p>
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		<title>By: AIDAN WALSH</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-182155</link>
		<dc:creator>AIDAN WALSH</dc:creator>
		<pubDate>Sun, 20 Nov 2011 17:37:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-182155</guid>
		<description><![CDATA[I am not trying to be negative here whatsoever but the reality is there has been to much filth within the medical community and to day this continues to happen!! 

Numerous children are now deceased as a result of all these wrong doings and complete inhumane neglect!! It is now time that patients/families across the globe 

join forces to ask for full public and also criminal enquiries into these inhumane attitudes! To this day the illness is still dismissed within the medical community 

and patients are laughed at and denied any chances for proper care and/or immediate clinical trials.This same attitude has gone on for decades and will 

continue and in the end it is the patients who suffer and die as a result of these sick attitudes!! Is this really the way to treat people as a whole in this fasion who 

prior to their illnesses were taxpayers and productive people of society. No one deserves these cruel and complete inhumane neglects that are going on and 

continue to this day!! We need full public and criminal inquiries and let those who should be accountable including also the insurance industries be brought to 

justice and let the public as a whole know the full truth about this devastaing chronic illness they called &#039;chronic tired syndrome&#039; and patients get full monetary 

compensations for all theIR losses!! Is this illness actually a misdiagnosed entity that was just dismissed by the medical community because of their complete 

neglect then if that turns out to be the case then civil lawsuits &#039;will&#039; be forthcoming!! Sincerely Aidan Walsh Southampton, U.K. p.s. How many more 

children have to die before this illness is given its proper status as a genuine chronic &#039;physiological&#039; illness instead of comical phycological 

stupidity...PUBLIC/CRIMINAL ENQUIRIES NOW!!]]></description>
		<content:encoded><![CDATA[<p>I am not trying to be negative here whatsoever but the reality is there has been to much filth within the medical community and to day this continues to happen!! </p>
<p>Numerous children are now deceased as a result of all these wrong doings and complete inhumane neglect!! It is now time that patients/families across the globe </p>
<p>join forces to ask for full public and also criminal enquiries into these inhumane attitudes! To this day the illness is still dismissed within the medical community </p>
<p>and patients are laughed at and denied any chances for proper care and/or immediate clinical trials.This same attitude has gone on for decades and will </p>
<p>continue and in the end it is the patients who suffer and die as a result of these sick attitudes!! Is this really the way to treat people as a whole in this fasion who </p>
<p>prior to their illnesses were taxpayers and productive people of society. No one deserves these cruel and complete inhumane neglects that are going on and </p>
<p>continue to this day!! We need full public and criminal inquiries and let those who should be accountable including also the insurance industries be brought to </p>
<p>justice and let the public as a whole know the full truth about this devastaing chronic illness they called &#8216;chronic tired syndrome&#8217; and patients get full monetary </p>
<p>compensations for all theIR losses!! Is this illness actually a misdiagnosed entity that was just dismissed by the medical community because of their complete </p>
<p>neglect then if that turns out to be the case then civil lawsuits &#8216;will&#8217; be forthcoming!! Sincerely Aidan Walsh Southampton, U.K. p.s. How many more </p>
<p>children have to die before this illness is given its proper status as a genuine chronic &#8216;physiological&#8217; illness instead of comical phycological </p>
<p>stupidity&#8230;PUBLIC/CRIMINAL ENQUIRIES NOW!!</p>
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		<title>By: Nancy</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-179617</link>
		<dc:creator>Nancy</dc:creator>
		<pubDate>Sun, 13 Nov 2011 17:30:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-179617</guid>
		<description><![CDATA[Shelley,  I was 38 in 1988, it was april and I have never felt the same since. This disease is hell on earth.  Throughout the years I have done the best I could but now I am so weary of the fight. How can one carry on when my body aches so much too weak to cry. I know your situation because I&#039;m there right along with you. Not Hot in Cleveland.]]></description>
		<content:encoded><![CDATA[<p>Shelley,  I was 38 in 1988, it was april and I have never felt the same since. This disease is hell on earth.  Throughout the years I have done the best I could but now I am so weary of the fight. How can one carry on when my body aches so much too weak to cry. I know your situation because I&#8217;m there right along with you. Not Hot in Cleveland.</p>
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		<title>By: Janet Hahn</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-179207</link>
		<dc:creator>Janet Hahn</dc:creator>
		<pubDate>Sat, 12 Nov 2011 14:16:40 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-179207</guid>
		<description><![CDATA[I have had CFS since 1986. I was virtually housebound for 10 years, then entered a brain injury study involving hyperbaric oxygen therapy. After months of treatment I was able to go back to work but that was all I could do. Due to work schedule I could no longer get the hbot (hyperbaric oxygen treatments). My focus turned to eating fresh foods. Avoidance of processed foods is essential. After years of supplements, behavior modification, and eating healthy I felt well enough to start dating (at age 54). I got married oct. of 2010 and relapsed several months after marriage. I now have a portable hyperbaric chamber in my home and am making a come back. HBOT has been a life saver for me. Most physicians are skeptical about HBOT but I urge CFS patients to do their own research &amp; confer with a physician that specialized in HBOT.]]></description>
		<content:encoded><![CDATA[<p>I have had CFS since 1986. I was virtually housebound for 10 years, then entered a brain injury study involving hyperbaric oxygen therapy. After months of treatment I was able to go back to work but that was all I could do. Due to work schedule I could no longer get the hbot (hyperbaric oxygen treatments). My focus turned to eating fresh foods. Avoidance of processed foods is essential. After years of supplements, behavior modification, and eating healthy I felt well enough to start dating (at age 54). I got married oct. of 2010 and relapsed several months after marriage. I now have a portable hyperbaric chamber in my home and am making a come back. HBOT has been a life saver for me. Most physicians are skeptical about HBOT but I urge CFS patients to do their own research &amp; confer with a physician that specialized in HBOT.</p>
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		<title>By: Shelley</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-176307</link>
		<dc:creator>Shelley</dc:creator>
		<pubDate>Sat, 05 Nov 2011 06:22:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-176307</guid>
		<description><![CDATA[I was 34 years old in the spring of 1986 when I was suddenly, in an instant, struck down by CFIDS - which means I&#039;ve been afflicted with this disease for going 26 years now.  Up until the spring of 1986, I thought I was perfectly healthy but since then have developed many other health problems.  This disease absolutely destroys a person&#039;s normal lifestyle.  I am still praying and hoping for a cure.  Exhausted in Sierra Vista, AZ!]]></description>
		<content:encoded><![CDATA[<p>I was 34 years old in the spring of 1986 when I was suddenly, in an instant, struck down by CFIDS &#8211; which means I&#8217;ve been afflicted with this disease for going 26 years now.  Up until the spring of 1986, I thought I was perfectly healthy but since then have developed many other health problems.  This disease absolutely destroys a person&#8217;s normal lifestyle.  I am still praying and hoping for a cure.  Exhausted in Sierra Vista, AZ!</p>
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		<title>By: Justin Reilly, esq.</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-176268</link>
		<dc:creator>Justin Reilly, esq.</dc:creator>
		<pubDate>Sat, 05 Nov 2011 03:49:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-176268</guid>
		<description><![CDATA[I forgot to add that the science shows that pwME have no higher rates of psychiatric disorders than people with other serious physical diseases like MS.]]></description>
		<content:encoded><![CDATA[<p>I forgot to add that the science shows that pwME have no higher rates of psychiatric disorders than people with other serious physical diseases like MS.</p>
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		<title>By: Justin Reilly, esq.</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-176266</link>
		<dc:creator>Justin Reilly, esq.</dc:creator>
		<pubDate>Sat, 05 Nov 2011 03:48:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-176266</guid>
		<description><![CDATA[I&#039;m happy to say that most of this article is good. However, the Headline and last things people read are usually what people take away and this is what they will take away:

&quot;Conquering Fatigue&quot; and &quot;Many people with CFS don&#039;t have a psychiatric disorder.&quot;

Please correct these errors.  The name of the disease is M.E. or &quot;CFS&quot; not &#039;fatigue.&#039;  This is like calling Leukemia or ME &#039;fatigue.&#039;  Yes, fatigue is perhaps the major symptom of all three diseases, but calling these diseases &#039;fatigue&#039; is misleading.

Also readers may get the false impression that the &#039;scientific community&#039; is all over the &quot;CFS&quot; problem.

Plus, what about the fact that according to CAA, it is now &quot;laser-focused&quot; only on research and not being in the media, due to patient protests that CAA has long misrepresented the disease and patients.

I guess the pledge to stay out of the media was worthless. In fact Vernon is now saying they are &#039;laser-focused&#039; on making &quot;CFS&quot; &quot;widely understood&quot;, among other things. I guess doing interviews with the media is part of making &quot;CFS&quot; &#039;widely understood.&quot; : (]]></description>
		<content:encoded><![CDATA[<p>I&#8217;m happy to say that most of this article is good. However, the Headline and last things people read are usually what people take away and this is what they will take away:</p>
<p>&#8220;Conquering Fatigue&#8221; and &#8220;Many people with CFS don&#8217;t have a psychiatric disorder.&#8221;</p>
<p>Please correct these errors.  The name of the disease is M.E. or &#8220;CFS&#8221; not &#8216;fatigue.&#8217;  This is like calling Leukemia or ME &#8216;fatigue.&#8217;  Yes, fatigue is perhaps the major symptom of all three diseases, but calling these diseases &#8216;fatigue&#8217; is misleading.</p>
<p>Also readers may get the false impression that the &#8216;scientific community&#8217; is all over the &#8220;CFS&#8221; problem.</p>
<p>Plus, what about the fact that according to CAA, it is now &#8220;laser-focused&#8221; only on research and not being in the media, due to patient protests that CAA has long misrepresented the disease and patients.</p>
<p>I guess the pledge to stay out of the media was worthless. In fact Vernon is now saying they are &#8216;laser-focused&#8217; on making &#8220;CFS&#8221; &#8220;widely understood&#8221;, among other things. I guess doing interviews with the media is part of making &#8220;CFS&#8221; &#8216;widely understood.&#8221; : (</p>
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		<title>By: Rob</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-176160</link>
		<dc:creator>Rob</dc:creator>
		<pubDate>Fri, 04 Nov 2011 22:26:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-176160</guid>
		<description><![CDATA[I can relate, Jenni and Max - I&#039;m disabled since &#039;06 .. not sure what&#039;s worse, the pain or not being able to walk, it&#039;s a nightmare.]]></description>
		<content:encoded><![CDATA[<p>I can relate, Jenni and Max &#8211; I&#8217;m disabled since &#8217;06 .. not sure what&#8217;s worse, the pain or not being able to walk, it&#8217;s a nightmare.</p>
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		<title>By: Max</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-176066</link>
		<dc:creator>Max</dc:creator>
		<pubDate>Fri, 04 Nov 2011 17:55:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-176066</guid>
		<description><![CDATA[Hi Jennie,   How are you coping with the pain and depression caused by CFS after 17 years. I am using 7 different vitamins, 350mg of effexor and 20mg of oxicodone daily. I have been through all of the antidepressants. because CFS. increases in strength. If I stop any of the meds CFS becomes intolerable. if i stop all the meds The pain is intolerable. I would die because of the bone crushing pain.]]></description>
		<content:encoded><![CDATA[<p>Hi Jennie,   How are you coping with the pain and depression caused by CFS after 17 years. I am using 7 different vitamins, 350mg of effexor and 20mg of oxicodone daily. I have been through all of the antidepressants. because CFS. increases in strength. If I stop any of the meds CFS becomes intolerable. if i stop all the meds The pain is intolerable. I would die because of the bone crushing pain.</p>
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		<title>By: Jennie</title>
		<link>http://www.saturdayeveningpost.com/2011/10/24/health-and-family/medical-mailbox/cfs.html/comment-page-1#comment-171540</link>
		<dc:creator>Jennie</dc:creator>
		<pubDate>Tue, 25 Oct 2011 15:35:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.saturdayeveningpost.com/?p=40031#comment-171540</guid>
		<description><![CDATA[I have been disabled by CFS for 17 years.  This illness destroys lives.  But all the research underway gives me hope.  Thank you for covering this important story, and thank you to scientists like Dr. Vernon who are working to turn my hope into reality.]]></description>
		<content:encoded><![CDATA[<p>I have been disabled by CFS for 17 years.  This illness destroys lives.  But all the research underway gives me hope.  Thank you for covering this important story, and thank you to scientists like Dr. Vernon who are working to turn my hope into reality.</p>
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