Part 2: Giving Back

Country singer George Canyon speaks about the recognition he’s most proud of—a humanitarian award for his work to support finding a cure for type 1 diabetes. Canyon offers inspirational talks and performances for children living with type 1 and their families in Canada and the U.S.

Post: You have talked to thousands of type 1 diabetic kids. What do you want them to know, and how do you encourage them?

Canyon: My basic message to kids is: Control your diabetes, and live your dreams. One way that I connect with the kids is by comparing our blood sugar numbers—it’s just something they like to do. But children need to understand that they can and must control their diabetes. When they lend a hand in testing their blood sugar and taking their insulin, in eating right and exercising regularly, they develop a certain pride in taking care of themselves. Over time, that sense of responsibility lays the groundwork for controlling diabetes and achieving success throughout life.

At age 14, I was told I could never fly an airplane or be an Air Force captain. But I never gave up on my dreams. Today, I have been a pilot for 3 ½ years. I fly my own plane, and I’m an honorary captain in the Air Force. I let the kids know that I am living proof that type 1 diabetics can achieve their dreams.

Post: What is your message for parents of kids with type 1?

Canyon: I stress the psychological side of the disease. Looking back on my teen years, I think 80 percent of the control of my diabetes was in my head. Today I frequently hear parents say their daughter won’t take her insulin or their son says he forgets to take it. Once I confronted one of those children and said: You aren’t forgetting to take your insulin, are you. And she blurted: “No, I’m not. But people keep telling me that I can’t do things that I want to. So why take shots?”

I was able to change her mindset by encouraging her to prove those people wrong. She needs to show them that she is healthy and able to achieve her goals. That bit of motivation clicked a psychological drive back into action. Now she takes care of herself physiologically because the brain is driving her to take care of her own diabetes.

Post: Having strong role models is very important to young people.  Did you have one?

Canyon: I had no one. Don’t get me wrong—I had wonderful people around me, my parents, nurses, and my doctor, but I was not aware of any role model in the music business, in Hollywood, or the sports world who was saying, “Hey I’m a type 1 diabetic and I’m living my dream.” So I always said to myself that if I ever became successful, in whatever career, I was going to be a role model to kids in some way.

Today, it’s clear to me that my work with the kids fills me up more than it does them. But I can tell from their conversations that they really do pay attention to celebrities and having role models is important to them.

Post: What do people without diabetes need to know about the condition?

Canyon: Society as a whole needs to step back and take time to learn just how well people can live diabetes. Today’s kids with type 1 diabetic juvenile-onset are well educated and in tune with their body and their disease. Many are also in incredibly great physical condition, especially with new advances in treatment such as insulin pump therapy.

Juvenile type 1 diabetes affects millions of people.  Everybody should know about the steps that have been made by the Juvenile Diabetes Research Foundation and others in controlling and understanding of this disease. It’s not caused by eating poorly or not getting enough exercise. And it’s not the end of one’s dreams.

Post: How can readers tap into the latest information and research about type 1 diabetes?

Canyon: There are some fantastic websites for parents and kids with diabetes that are also great tools for people who don’t have the disease but want to learn about it. Here are three:

Juvenile Diabetes Research Foundation International is one of the best resources out there.

The Animas website. This is the insulin pump that I have and the only one that I know. People will be truly amazed at how the control of diabetes has changed.

Children With Diabetes is doing unbelievable things to help kids with type 1 diabetes physiologically as well as psychologically and to support their families and other adults as well. The CWD organization sponsors large events; I was at one that 2500 kids with diabetes attended. The organizers had them break into age groups, and suddenly one child was with 50 or 100 or 200 other type diabetics of the same age. There was an instant sense of belonging! They talked about their diabetes and about things they might not mention to their healthcare professionals or their parents. Peer support is so important.  Kids will listen to a buddy who says, “Oh you should do this instead of that,” before they’ll listen to their parents or other adults.

Post: Is there anything you would like to add?

Canyon: I’m real excited to get out there with people in mainstream society who might not be touched by type 1 diabetes and speak openly about my disease.

I can’t stress enough that JDRF and other diabetes researchers are not just trying to find a cure for the disease, they are also working to find new and better ways to treat it. It’s so important that we all try to help as much as we can.

Control Your Diabetes and Live Your Dreams, Part 2 The Saturday Evening Post

There are several forms of diabetes. Type 1 occurs when an overactive immune system knocks out cells in the body that produce insulin. Once called juvenile or insulin-dependent diabetes, the condition can occur at any age. Research continues, but to date, its exact cause remains unknown.

Post editors asked superstar country singer George Canyon about the challenges of living with diabetes and his inspiring work with kids and their families who are also coping with the endocrine condition.

Part 1: A Young Man’s Struggle

Post: When were you diagnosed with type 1 diabetes?

Canyon: I was diagnosed at age 14, after developing the symptoms that most type 1 diabetics suffer, including drinking anything you can get your hands on, going to the bathroom all the time because you are drinking so much, and sometimes feeling tired or cranky.  Thinking back, the symptoms began about this time of year, so I’m approaching my anniversary of sorts.

Dad headed up a hospital lab, and he later told me that he suspected type 1 diabetes right away. My blood sugar was tested, but then my parents let me enjoy Christmas with the family. The next day, however, I was admitted to the hospital. My sugar was 792, which is extremely high.

I was young, and bounced right back. After one week in the hospital, I was ready to go home. My grandmother had type 1 so I was quite familiar with needles and all. My only concern was getting back to Air Cadets, a group that in U.S. might compare to Young Marines. Since the age 5, I had wanted nothing else in life than to be in the Air Force and be an Air Force pilot. I wasn’t concerned about being a diabetic— I just didn’t want to miss another meeting of the Air Cadets!

Post: What happened then?

Canyon: My dream was abruptly taken away from me. When I went back to Cadets, the Commanding Officer called me into his office and said, “Son, I’m sorry to tell you this, but you will never be in the Air Force and you will never fly airplanes.” I was devastated. I remember that conversation, and how I felt, as though it were yesterday.

Post: How did your young life change and what challenges did you face?

Canyon: Having a sense of belonging is very important to a 14-year-old, and type 1 can be ostracizing disease. For example, the first birthday party that I attended as a type 1 diabetic was for a buddy mine. My friends were all having birthday cake. I was eating an apple.  Suddenly, I didn’t belong. I was different, and it played very heavily on my mind.

I had many reasons to rebel—being a teenager, having type 1 diabetes, and losing what I believed to be my sole purpose in life. But I chose a different path. As I now tell the kids when I talk to them, I chose to be stubborn in a positive way. I made up my mind to control my diabetes and to not let it control me.

I also decided to become a doctor and to cure the disease that stole my dreams. Eventually I was on my way to medical school. Then, I auditioned for a band. I got the job and called my Dad—that’s another conversation I’ll never forget—and went on the road in 1990.

Post: Is having type 1 diabetes particularly challenging in light of your music career?

Canyon: It was very tough at first. Back in the 90s, we would play six nights, travel one, and then play the next town for six more. We did that over and over. I was lucky to have strong support. And I was doing the best I could to treat my type 1 diabetes in the conventional way—5 needles a day and trying to exercise and eat right. But I’m certain that those days on the road took a toll on me.

Then, about 4 ½ years ago, I went on the Animas insulin pump. The device gave my life back to me in a completely and unbelievably way. Suddenly I felt normal again. Honestly, there are days that I forget I’m a diabetic. Today I encourage parents to talk to healthcare providers about getting children on insulin pump therapy as soon as they can. I lived my teenage and early adult years treating my diabetes conventionally. Having the pump is truly amazing.

Special Offer

During the month of November, George Canyon is making a donation to the Juvenile Diabetes Research Foundation for every free download of his hit single, “I Believe in Angels.” Click here for the free song.

Coming in Part 2: More from our interview with George Canyon about his ongoing efforts to promote diabetes research, education, and awareness.

Control Your Diabetes and Live Your Dreams, Part 1 The Saturday Evening Post

We’re happy to say that the tradition continues. In the September 2010 issue, Post writer Elizabeth Svoboda profiles eight remarkable discoveries that offer hope for practical solutions to debilitating medical problems such as diabetes, heart disease, arthritis, and more.

Here’s a sneak peak at the upcoming issue, as well as a sampling of diabetes discoveries from the Post archives.

A Look Ahead

Artificial Pancreas (w/image and video of automated insulin delivery system)

When Tyler Wolf was diagnosed with type 1 diabetes as a teenager, his diabetes management routine abruptly became a looming part of his life. Like many of the nearly 24 million diabetes sufferers in the United States, Wolf had to test his blood sugar and give himself insulin injections every day. The grueling routine grated on him. He sometimes rebelled, refusing to check his blood sugar and ending up woozy and delusional as a result.

Dr. Stuart Weinzimer, an endocrinologist at Yale University, is working to ensure that someday patients like Wolf won’t have to wrangle with needles and home test strips anymore. In conjunction with Minneapolis-based Medtronic, Dr. Weinzimer is developing an “artificial pancreas” for diabetics. This automated insulin delivery system, about the size of a small paperback book, includes a continuous glucose monitor (CGM) that channels real-time blood sugar readings to an insulin pump, which then directs the pump to dispense the proper amount of insulin to keep blood sugar levels in equilibrium.

Wolf was among the first patients to evaluate the device, and he was immediately impressed at how it took over the work of managing his disease for him. “The idea of never having to worry about monitoring—that’s close to a cure,” Wolf says. Dr. Weinzimer hopes that it will be commercially available within the next decade.

Here’s a video of the experimental automated insulin deliver system from Medtronic.

A Look Back

Some 70 years before Dr. Weinzimer’s work on an artificial pancreas, research by Dr. F. G. Banting and Dr. Charles Best and colleagues at the University of Toronto led to the remarkable discovery of insulin for treating diabetes, as described in the June 9, 1923, Post article “Clearing the Skies for the Sugar-Poisoned” by Woods Hutchinson, A.M., M.D., who writes:

“Although the processes concerned were extremely complicated and progress correspondingly slow, we are now happily able to announce the first positive step toward the answer of the fateful riddle [why sugar builds up in the bloodstream], one that bids fair to give new hope to all diabetics.

“This is no less than the discovery of the hormone—Greek for stimulator—or spark juice, which enables our bodies to burn sugar and whose absence makes us diabetic.”

By May 15, 1948, the Post reported in “What Your Should Know About Diabetes” by Steven M. Spencer, that Dr. Priscilla White’s “baby-saving program” had dramatically decreased infant deaths by treating diabetic mothers with insulin shots during pregnancy. The US Public Health Service was conducting blood testing of entire communities, and leading expert Dr. Elliott Joslin (founder of today’s renowned Joslin Center in Boston) was described as a zealous archfoe of diabetes who was unmatched “in spreading hope among the known diabetics and urging intensive search for the unknown ones”.

Oral pills for older people with mild diabetes made their American debut in the August 24, 1957, issue of the Post. The article, “Good News for Diabetics” written by Milton Silverman, chronicled the accidental discovery and eventual controversial FDA approval of tolbutamide (Orinase). Early research by French physician Dr. Auguste Loubatieres in sulfa drugs ultimately gave rise to the new pill but was overlooked for more than a decade, wrote Silverman.

“Clearing the Skies for the Sugar-Poisoned” by Woods Hutchinson, published June 9, 1923. “What Your Should Know About Diabetes” by Steven M. Spencer, published May 15, 1948. “Good News for Diabetics” by Milton Silverman, published August 24, 1957.

Medical Breakthroughs: Past and Present The Saturday Evening Post