Lost and Found: One Woman’s Struggle to Help Her Neurodivergent Brother

The population of older adults in America with an intellectual or development disability numbers over one million. What happens when their caretakers pass away?

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When I take my 69-year-old brother to lunch, I already know what he will order: steak, onion rings, and a large mug of beer. With a shy smile, he shares corny jokes with the waiter and orders a brownie sundae, which he devours with childlike glee.

As I watch him relish his favorite meal, which we share about once a month, I am grateful that he is happy and safe. It wasn’t always that way.

Mom described Ben’s birth in 1956 as traumatic, a double breech with the umbilical cord wrapped around his neck, depriving him of oxygen. She’d been heavily sedated, and the doctor chose forceps over a C-section. She’d told her harrowing story many times, but rarely acknowledged her only son might have suffered lasting damage.

In the 1960s, few children without extreme disabilities were classified as “special needs,” and there was no school intervention. No one used the term neurodivergent. When Ben was held back in first grade, our frustrated father shouted at him while Mom stood by. Watching my little brother sobbing at the kitchen table, I felt helpless.

As time passed, while his peers were joining sports teams, leaving for college, and marrying, Ben stayed home and became my father’s helper. Dad — an Italian immigrant who built a cutlery ­service — taught Ben to sharpen knives, hoping the skill would secure his future.

At 31, with a toddler on my hip and pregnant with my second child, I put it to my parents bluntly: “What’s going to happen someday to Ben when you’re not around?” They dismissed my concerns — a reckoning seemed a long way off.

When Mom and Dad passed, Ben was on the cusp of 60, alone in their four-bedroom home. Neighbors we’d grown up with had long since gone. Sleeping in his clothes, he rarely left the house, playing video games and combing newspapers for celebrity articles — slipping further into his own world.

My role as executor was clear: I had to sell the house. But what about Ben? The reverse mortgage had depleted the equity. There was no life insurance. And Dad’s business had fallen into shambles after he became infirmed.

I called a county caseworker.

“What’s his diagnosis?” she asked.

“He might be on the autism spectrum, but was never diagnosed,” I said. “Is there anything you can do?”

She gave me a list of agencies to call: same questions, same results.

“He’s not my problem,” some said.

“We can’t leave him on the street,” I insisted.

My own therapist agreed that I was not responsible. Still, I was ­unwilling to abandon him.

The more I researched options, the more discouraged I became. The population of older adults in America with an intellectual or development disability numbers over one million, almost double that of 20 years ago. When parents of a special-needs adults die without a plan, many ­become wards of the state with an appointed guardian making life decisions. Some end up in homeless shelters or subway stations. Both possibilities were terrifying.

As the closing loomed, I confided my panic to my long-time hairdresser, Kelly, who jumped into action.

“I’ll bet we can find a place for him,” she said. We scoured listings at over-55 communities with affordable condos and went for a look.

Digging into my savings, I put a deposit on a small unit. Then I rented a U-Haul and, with the help of two volunteers, moved Ben in. This way I knew he’d never be homeless.

The gated community’s winding paths were tranquil, and the community room with pool tables and a television was a hub of activity. But I was still uneasy. Perhaps a companion would help.

After checking the pet policy, I went to a shelter and asked for a gentle, trained dog. They brought out a Yorkie mix, a bony ragamuffin with bright eyes and unruly hair — no chip, no collar, no response on Facebook. “I’ll take him.”

When I showed up with my furry surprise, Ben broke into a goofy smile and cradled him against his chest as I unpacked food and a dog bed. A week later, my brother announced he’d named the pooch Little Bennie, after himself.

On my next visit, Ben alerted me he had to be back by 4 p.m. for Little Bennie’s walk. Never had I known him to be aware of time or schedules.

Months later, a round furball scampered up to me.

“Looks great,” I said. “But he’s so fat! What are you feeding him?”

“Oh, just his dog food,” he said. “And whatever I eat. You know, Cheerios, soup, spaghetti.”

As we walked Little Bennie, everyone seemed to know him.

Within a month, Ben landed his first real job, rounding up shopping carts part-time at a nearby store. My brother spoke of his work with pride. He paid his electric bill and bought groceries, while I covered the property taxes and the water bill.

For the first time since our father died, Ben was not surrounded by boxes, and there were clean sheets on the bed. He delighted telling stories about his best friend.

“Every night, Little Bennie jumps on my bed,” he said. “Then he goes to sleep.”

I tried to prepare him for the day that Little Bennie, an older dog, might fail to greet him at the door.

When Little Bennie’s health failed three years later, Ben called me. I could hear the fear and drove an hour to accompany him and Bennie to the vet. Ben, who never cried at our parents’ funerals, was stoic. I was concerned he might regress, especially after the store he’d worked at closed.

But the routines and lessons he’d learned taking care of Little Bennie endured. It took months, but he landed work at a movie theater, checking tickets and cleaning up.

When I asked if he wanted another dog, he said Little Bennie could not be replaced, and besides, he was out of the house too much to take care of a new pet (exactly what I’d hoped would happen).

On his dresser, I saw he’d placed a paw print and lock of Bennie’s fur.

 

The Ruth Bonapace’s work has appeared in many publications, including The Southampton Review and American Writer’s Review. Her debut novel, The Bulgarian Training Manual, was published in 2024.

This article is featured in the March/April 2026 issue of The Saturday Evening Post. Subscribe to the magazine for more art, inspiring stories, fiction, humor, and features from our archives.

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